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This has been a very crazy week. Tuesday, I headed out the the cancer center in Winston-Salem for another MRI on my calf for my fibromatosis. This is the 6th MRI I have had since last July. My last once showed positive findings for a possible recurrance and with the luck we have been having lately, I assumed the worst. I did, however, get a good report. My tumor has not come backand I don't have to have another MRI until a year from now!! As I was driving home, thrilled with my good news, a rock hit my windshield and cracked it pretty severely. I couldn't do anything but laugh at that. It was just ridiculous.

Luke had his EEG on Wednesday and the test went great. We put him to bed at 11:30pm and woke him at 4 am to make sure that he was sleep deprived. It was exhausting but he slept through the whole thing, which was exactly what we needed him to do. Today we met with the neurologist. He said that Luke's EEg was normal, which enabled us to rule out a couple things; Tourette's disorder and Infantile spasms. We have not been able to rule out seizures. The next step is that we have to keep a journal of Luke' s behavior. We have to first, see if he is having the episodes in his sleep, which means staying up and watching him sleep. Brian and I will take turns staying up for a couple nights to see if it happens. Secondly, we have to see if there is some activity that triggers the episodes, such as being excited, tired, playing or reading. The last test we can do at home is that, during an episode, we have to try to distract him out of it by touching him or talking to him. If he doesn't have them in his sleep, if they are triggered by a stimulus and if we can distract him out of it, it is not a seizure that he is having, but just his body's response to something.

Our doctor answered a laundry list of questions and really conforted us during this time. If we do feel like he is having seizures, they would do an extensive monitor of his brain and try to capture these episodes with the EEG. That would involve hooking the monitors to Luke's head for a 3 day period. We REALLY don't want to do this test (imagine a one year old with wires hooked up for 3 days, Luke won't even wear hats!) so it is a last resort for us at this point. The doctor is going to review the videos of the episodes with several other doctors and give us his opinion based on that. So it's still a little bit of a waiting game at this point but we are able to relax knowing that his brain is working perfectly!