Luke

I know that I have talked to some of you or texted about what is going on with Luke, but I've decided to put all the info on here. It's a little bit easier than trying to call, email or text everyone.
On April 16th, I started noticing little "tics" with Luke. He was clenching his jaw and his head was jerking backward. It was usually just for a split second and usually when he got very excited. At first I thought it was just a silly face that he was making, since he is doing so many funny things now. I mentioned it to Brian, but he didn't notice anything. I kept a close eye on Luke, trying to determine if I was just being paranoid, or if something was really wrong. One evening, I sat down to read to him, his favorite thing in the world. As I was reading, Brian was watching. The head jerks and clenching were very apparent and seemed to both of us to be involuntary. Brian got the video camera so that he could have something to show the pediatrician. SOme of the tics were so sever that if he was standing up, it would knock him over. We stopped using a steroid medication that he had for his eczema and that seemed to really help. A few days passed after that with no tics at all. We thought that he was better and didn't call the doctor. Every now and then, I would notice a small one when he got very excited, and sometimes just without explanation, but they did seem to be getting better.
This past Sunday, we were all sitting in the kitchen. Luke was playing on the floor and he was laughing at Brian because Brian sneezed (sneezing is VERY funny). His laughing all of a sudden, turned. His chin dipped into his chin, his arms and legs stiffened and began to shake, his laughing turned into an almost choking sound. I don't know exactly what happened but it looked very much like a seizure. We called the doctor right away and she told us to go the pediatric ER. They did a catscan and didn't find any abnormalities, and his blood work was normal. He had another episode in front of the doctor, smaller than the one at home. They sent us home without answers and told us to make an appointment with a neurologist.
We have an appointment set up for Friday. On Thursday, we have to put Luke to bed late and wake him 2 hours earlier than he normally gets up on Friday. They will hook him up to a machine that will monito his brain activity. They want to simulate a stressful situation and try to induce an episode. The doctor did say that his development is normal, he has meet all of his milestones for his age, which is a very good thing. He has also never lost consciesness during an episode, which is also a very good thing.
As a parent, I think that the waiting game is the worst part. I want someone to tell me right now what is wrong and what I can do to fix it. I want to know that my baby is okay and will always be okay. We have spent the last few days watching Luke's every move, never letting him out of our sight. We have videotaped as much as we could so that we can show the doctor exactly what we are seeing. Most importantly, we have prayed. That's all I know to do for him. Even now, as my eyes are filling with tears, I feel helpless, but never hopeless. I know that Luke is my gift from God and I can't imagine for one second that something is seriously wrong with him. Brian and I ask that as many of you that will, please pray with us that everything will be okay.
I will update all of the information as it comes in here on my blog, so please feel free to check it periodically and leave comments. We appreciate all of our friends and family that have expressed their concern during this time, as well as all the other crazy times that we have experienced in the last year. You are all wonderful and we are lucky to have you!!